Open Sorcery

Tag: MECFS

  • Me when people wake me up from my chronic fatigue slumber:

    -Allēna

    #NEISvoid #chronicfatigue #MECFS #cranky #owl

  • Finally somewhat awake.

    I crashed for about 13 hours.. I apparently needed the sleep, lol. Will today bring more sleep or productive things? TBD. I don’t feel like I have spoons OR fucks to give today, really.

    -Allēna

    #NEISvoid #chronicfatigue #MECFS #spoonie #chronicpain

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  • Me when I have to do more than two (2) tasks or activities that require conscious thought and/or movement.

    On another note, I finally fucking showered today… It’s been… Too long. -Allēna

    #NEISvoid #chronicfatigue #MECFS #naptime #chronicpain #chronicillness #painsomnia

  • Welp, just dropped my phone.

    Looks like it’s time for sleep, according to the universe..

    -Allēna

    #sleeptime #NEISvoid #eepy #chronicfatigue #MECFS #whatsasleepschedule

  • Challenges

    Ah yes. An interesting prompt.

    What is the biggest challenge you will face in the next six months?

    Staying alive, in all honesty. We live in a hellscape and I’m under a lot of stress right now being a repository of knowledge and stress buffer/mediator for a lot of people. It’s so bad right now that I don’t know how I feel personally about a lot of the situations I’m the human DMZ in, and I am currently too exhausted to try. Alexithymia and chronic fatigue are bitches and a half.

    I’m still trying to care for myself as best as possible in all of this, finding a balance is just…. Difficult. It’s one of the reasons my phone is eternally on Do Not Disturb. It gives me some semblance of artificially manufactured peace and quiet amidst all the chaos.

    I think in another life, I would have made a great emergency medical technician.

    -Allēna

  • Y’all, I’m tired.

    I’ve been doing medical research all day.

    So it’s time for me to just come out and say something.

    I want a snake. A pet snake.

    There. I said it.

    -Allēna

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  • What’s this? Another prompt I want to actually take somewhat seriously?

    Who are your favorite people to be around?

    People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

    I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

    I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

    -Allēna

  • This sounds like the beginning of a bad joke, but…

    Guess who has 1.33 functioning hands, just woke up, rolled over, and Googled “how to win a Pulitzer” and is now probably going back to sleep now that she understands the submission procedure?

    This bitch ✨

    I’m so tired despite taking my head honcho migraine meds when I finally collapsed at about 3:30 this morning , but hey… At least I know how to (possibly) win a Pulitzer now 🤣

    -Allēna

  • I picked the wrong day to have Do Not Disturb off. Every notification ever… So that’s going back on and I’m going back to sleep. Night night everyone… -Allēna #NEISvoid #chronicfatigue #MECFS #naptime #eepy

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  • I appear to have mistaken my spoons for my fucks again.

    I have no spoons, but all the fucks to give. This calls for another nap… 😭💤😴

    #NEISvoid #chronicfatigue #MECFS #naptime #eepy

    -Lazarus