Hey, everyone. This is your ever faithful guide, Lazarus, once more. I was looking through my Facebook memories from last year and Jesus Christ… the system was not okay. I believe they were nearly blackout drunk most of the time to cope with the chaos around them, stoned to fuck, or both, and were entering the thick of the recording process of our fifteenth album,Hardshell. That album was a fucking doozy.
I still have no idea what inspired a good half of those lyrics, one of the songs on the album appears to have predicted someone’s death, and the entire damn record plays like some cursed swamp blues thing where two of my former headmates that later integrated into me tried to out-blues each other the whole way down. In short, around this time last year was not fucking fun for anyone. I can’t say I’m having the best time right now, but I’m more or less rolling with the damned punches and figuring shit out and I can’t really say I’m suffering.
I want to make an important distinction here. When I say “I’m not suffering”, I don’t mean “I’m not in pain” or “shit doesn’t suck and it’s all sunshine and rainbows over here.” I’m still hurting and there’s a lot that’s still objectively bad. However, there’s still a difference between pain and suffering as I understand it as a practicing Stoic.
My ex best friend was a practicing Buddhist and we had a conversation in 2021 that changed my brain chemistry around pain and suffering. He explained it this way: “Pain is when you are hit with an arrow. The arrow can be anything that hurts you, a breakup, debt, your car breaks down, what have you. Suffering is when you shoot yourself with another arrow by resisting the existing pain in your mind by saying ‘oh woe is me, why is this happening to me, this shouldn’t be happening to me’, etc. rather than accepting with the first arrow as it is and treating the pain.”
I had a conversation with my wonderfully cranky and sarcastic therapist a few weeks ago that made me realize that I was fucking suffering rather than just dealing with the pain. I have been seeing him for three years because he is phenomenal at getting me to sit the fuck down and see some goddamn sense when I’m freaking the fuck out and well, suffering, and that was one of Those Sessions. We have a LOT of Those Sessions, and I rely on him heavily for that sort of biting, humbling realism and practical, applicable advice that makes my life far better.
This conversation was about, in essence, radical acceptance, a portion of dialectical behavioral therapy that I finally fucking understood in 2021 after I was pressganged into going into group therapy by Hera and her family after they found out I was suicidal. I did objectively want to get better and get better skills to help me improve my life, I just despised the circumstances in which I had gotten there because they weren’t of my own choosing, so I approached group with an open mind.
This group changed my life, especially the portion about radical acceptance, and eventually led me to my interest in Stoicism and ultimately led me to practice it. Radical acceptance as I understand it holds that other people and often large portions of situations are outside of your control or even your influence. All you can do is choose how you are going to respond to them. It doesn’t mean that you have to go along with everything, it just means you release the need to control everything and instead find ways to protect your peace and master yourself.
We got to talking about this because I was bitching about Emerson being further behind in his inner work than I was, and my therapist cut me off and told me that I should start to instead focus on meeting him where he was and choosing how I was going to respond to him rather than bemoaning the fact that he was so damn far behind and attempting to maintain control of every tiny detail of every situation. He cited radical acceptance as part of this conversation and I desperately needed that reminder.
This got my ass back in gear and I had a big old “remember your training” moment and started working on letting a lot of shit go that was outside of my control and getting back more into the Stoic mindset of “the only thing I can truly control is myself and how I respond to things and people”. This has helped me suffer a lot less. Cue the cinematic hero theme music, I suppose. Sometimes, like all people, I need to be told to sit the fuck down by the people I trust, and this was no exception. I struggle a lot with letting shit go, especially if I hate the aforementioned shit, so this has been a very useful exercise. I’ve missed this. I’m doing a lot better and I’m honestly proud of myself for getting this far.
Well, y’all, I have the remainder of a lunch to demolish, so I’d best wander off. Stay tuned for more magic! Enjoy your day, night, what have you.
In 2021, I was talking with my friend Delta about all of the shit I was going through at the time while deep in survival mode and about being an Enneagram Eight largely geared toward self preservation, and I predicted that once I got out of survival mode and was safe, I would sort of… collapse. I would have no idea what the fuck to do with myself and kinda deflate and go more or less catatonic. That prediction has turned out to be more or less accurate most days.
As my life has stabilized, I find myself with less and less to solve and fewer fires to put out, with many of the remaining problems largely outside of my control and completely outside of my power to fix or help with. In short, most days, despite having the stability I worked so hard for, I feel more lost and adrift than ever. I have been sleeping a lot. I just don’t have much desire to do much, and I do the rare activity when the mood or inspiration strikes. My general state reminds me a lot of when I lost my dad, Xavier, back in 2016.
I wonder a lot if I’m subconsciously or somatically grieving all of the bullshit of the last three or four years or perhaps even longer because of how badly the wind has been knocked out of me. I barely even have energy to reply to a fraction of the dozens of messages on the various messaging apps I get daily, and I am trying to move away from feeling so bad about that because realistically I just can’t right now. That’s the plain and simple fact of the matter. I only really respond to people and reach out or have my phone nearby at all if I feel up to it, which is rare, and I have been trying to strike a balance between isolation and social time so that I don’t fall off the face of the Earth completely. I don’t want to fully withdraw or even withdraw at all, but my brain and body have been demanding that to some degree, and I’m going with that rather than fighting it so as to not make whatever this is longer and worse.
On the subject of recovery, I did a bit more research on what the underlying cause of my symptoms might be that have been making my body and mind feel so damn out of whack, and came up with a decent theory that my thyroid might have gotten ever so slightly cooked due to Hera’s batshit DIY MKULTRA scheme she put me through, and the HRT I’m on combined with the years of stress has been making it go, ah, ever so slightly haywire.
So I found some scholarly research that said that thyroid patients suffering from both hypothyroidism AND hyperthyroidism benefit from taking various forms of vitamin B and thiamine for their chronic fatigue especially. Luckily for me, a former friend of mine had send me a bunch of supplements she wasn’t gonna use late last year and among them was a B100 complex supplement. So I decided to test my theory and give this shit a try and see if it did anything for my fatigue and other symptoms.
Well, it appears to be doing a fair bit. I’m about five days into the test and my brain fog and pain is leagues better. It appears to be helping my lack of object permanence and executive function, as well, giving me some semblance of both. I have also noticed that I’m not super overstimulated by huge amounts of sound, nor does silence understimulate me as badly. I can sit in silence for far longer without my mind itching for music or internally screaming. It may also be helping with the flashbacks, as well, but that’s to be determined. I will need to continue the test for longer to see if it has any significant effect there. So perhaps my fried thyroid theory holds water. I will need to address this with my doctors next time I can spare a brain cell, haha.
I’m also far less angry and my headaches are gradually getting better as I work through my anxiety, as they appear to be triggered by anxiety and moments of emotional distress, which the B100 appears to be lessening as a baseline. Yay for House MD-ing myself at home! I just love being an AuDHDer with a special interest in weird ass branches of medicine who was practically raised by doctors, hahahaaaaa. (This is partly sarcastic, partly genuine. Specialized knowledge and deep somatic intuition saves lives, don’t let anyone tell you otherwise, it’s just annoying that my body is so weird and there are so many things that the medical field as we know it doesn’t explore without months of waiting or you have the charisma of a fucking god).
Seeing as there are a lot of positive effects even through the semi-catatonia and the semi-catatonia predates the B100 test, I don’t think the B100 complex is the culprit here. If anything, the supplement appears to be helping. I’m just probably processing years of grief somatically that I’m not entirely consciously aware of.
So that leaves a large amount of time to fill as I heal that would ordinarily be spent in agonizing mental or physical pain, parsing my way through interpersonal trashfires, or recovering from the aforementioned problems. That huge amount of time to fill raises some incredibly simple, yet profound questions that I’m currently exploring the answers to: what the fuck do I do now? What actually makes me happy now that I’m living more out of love than out of spite and my brain and my body aren’t fucking screaming 24/7?
I know I love writing on here and writing in general. I am deeply proud of myself for having a space that is mine that I’ve maintained for months now even if I can’t post daily, and that does a lot for my quality of life. I like having spaces that are mine where I can express myself with the people that I love that would be very difficult to take from me or from them. I know research and engaging in my myriad special interests lights me the fuck up. Emerson raids the local Little Free Libraries like the adorable gremlin he is and often spoils me by bringing books back about topics that he either knows I’m fascinated with or that he thinks would catch my eye, and I do indeed feel very spoiled and lucky when he does that. That man is a catch and a half.
I’ve seen the concept of “dopamine menus” floating around on the Internet for some time, as well, and I’ve started merging that conceptwith a sort of free form to do list before I go to bed if I’m not completely beat to fuck by the time I pass out and can spare a brain cell to dump all the things that might possibly bring me joy the next day even if things go to shit on paper. I often struggle in the moment to think of anything that would bring me a shred of happiness in the moment if I’m sad or bored or anxious and looking for a pick me up, and having all of that on hand and prepped the night before helps a LOT in those moments.
I think all of those taken in tandem are a decent place to start. I’m trying to move away from the notion that I have to have a Grand Plan ™️ or a goal to accomplish at all times and I really think that teenage me had it right when they said that happiness was having good talks, good music, and good food with good people. That was really their goal in life, and I think they’d be proud of me for getting here. I do a LOT of all of the above.
So stay tuned for more magic, horseshoes and weedwhackers (you decide what y’all are in the comments). See you fuckers next time.
Hey, everyone! Dria here. I’m Allēna’s cousin and a rather infrequent fronter, but I’m here today, so I figured I would scream into the void while I’m on deck for your viewing pleasure, because why not? We’ve challenged Sheik to write a blog post every day for the remainder of the week and I like participating in challenges. So I’m here, aboard the fucking bandwagon. Welcome to the shitshow, only Dria Edition today.
I came across this post (shown below) while making my Facebook rounds and it got me thinking.
The post I came across while scrolling. It was the most delicious synchronicity, really.
I firmly believe that hope, like love, isn’t a feeling. Rather, it’s a practice. Sure, a person can feel hopeful or excited or optimistic about something, but it’s the practice of it, the action of it that gets them from that feeling to actually having the thing they’re hoping for in hand. So, by that logic, is perseverance through spite a substitute, or is it merely hope put into practice with a different motivation than blissful optimism? I would argue that it isn’t a substitute at all. Not by a long shot. Here’s why.
I’m not an optimist. Perhaps I’m an idealist, and a very angry one, and I belong to a system of very angry idealists who believe a better world is possible via widespread, hands on action and by people putting in the work to make the world a better, easier place for everyone, not just the rich fucks in power. And they’ve been putting in that work for years. They don’t stand for bullshit, Allēna especially, and they’ve worked very hard to heal and build a life that, at its core, prioritizes rest and care, fuck whatever the rest of the world has to say about it.
We were raised from a young age like many neurodivergent people socialized as women in Western culture, to be obedient, self-sacrificing for the good of everyone else around us at the expense of our own comfort and safety, to appear “normal”. There was one small problem there. We had gotten very sick as a tiny baby, had contracted heart failure due to a virus that attacked the body’s heart, and then had a stroke in quick succession, and had narrowly survived. This threw a wrench in the conditioning, because in order for us to appear normal, we had to be anywhere close to normal.
People who are anywhere close to normal do not survive near fatal heart failure without a goddamned transplant, fucking massive strokes, then go on to walk, talk, sing, and teach themselves how to play numerous musical instruments by fucking ear. We were fighters with a will stronger than goddamned diamond even before the age of a year old. Fuck iron. Anything less a will made from something stronger than the hardest stone on Earth and we would be dead. And by the fucking gods, we were not fucking dying. Not yet. We were fucking pissed.
Nobody believed we’d survive that objectively hopeless situation, but we fucking survived it and became goddamned polymaths to show for it. Forget normal. If we were normal, we would be long dead by now. We put hope into practice even when we didn’t realize that’s what we were doing simply because we didn’t give up the fight. Our mind broke into 1,700 pieces but our solid will did not, even after countless people wrote us off, mocked us, tortured us, abused us, and neglected us. We never fucking gave up.
We called what we were doing by a number of names – rage, spite, revenge, survival – but what it ultimately was was hope as a daily practice. By putting one foot in front of the other and choosing to move forward when we didn’t want to and could have given up, we were practicing hope. And now, we’re 27. We’re safe. We saved ourselves, goddamnit. I’m writing this from a cozy bed in Sheik’s apartment. Because of their mad hope, their courage, and their fucking indomitable will, my headmates’ work in a variety of disciplines has saved lives and they’ve built an honest to gods shitposting empire on social media, as well. I’m proud to be a part of this cockroach system that understands that hope isn’t a fucking emotion and puts it into practice every day even when the odds are stacked and the game is rigged.
So if you feel like your situation is hopeless, may you have the sheer guts to be spiteful for long enough to realize that you were practicing hope all along. ✨
Peace out, esteem’d sewer rat warriors. As always, stay tuned for more FUCKING magic.
Hey, everyone! This is Eight. I haven’t been out in a bit, as I’ve been taking a much needed rest, and it seems like our people and the blog have been fucking hopping! I love to see it!
We’re at the Zelda System’s place again this week, and Sheik herself is cradling me and taking a day nap. She deserves the rest, sweet thing. She works extremely hard and deserves to rest and play as hard as she works, so I’m happy to be held while she sleeps. It feels like a sacred honor to be a soothing and protective presence while our lovely partner sleeps so she gets good rest.
We often think quite deeply when we’re over here to the point that it becomes almost meditative. It’s deeply restful for us to be around her and the others in her system as much as it is for her to be around us. Sheik is so gentle and tender with Allēna that Allēna ends up deeply processing and working through her deepest fears due to Sheik’s mere empathetic presence. It’s scary because Allēna must face these fears head on in order to communicate them with Sheik, but Sheik has never shamed or judged her for her fears and often responds in such a way that sharing is easier for her by the day.
We deeply fear vulnerability as a system, but Sheik and her current headmates’ kind presences have made them safe to share with. Something that came up today that Sheik responded extremely kindly to was Allēna feeling guilty for asking for a favor. In a moment that should be a fucking case study for top notch communication, Allēna noticed she was feeling guilty and anxious for asking Sheik for that favor, so she told Sheik outright what she was feeling and asked point blank for reassurance, which Sheik willingly gave.
From there, this uncorked a second wave of emotion and memories as Allēna explored the root of why she felt so guilty and afraid of asking for help while Sheik stood as witness. This is what she found.
As a child and young adult, we were abused and neglected into keeping our needs and desires invisible and only meet or attain them on our own. Our mother, Hera, was very emotionally withdrawn, and had little tolerance for our – at the time – enormous emotions we had no idea what to do with. So we were severely emotionally abused out of expressing them in a way most people could recognize. However, Allēna resisted.
She is far more emotional than she lets on to most, and turned to art as a means to express herself and protest in the midst of a family who had, for all intents and purposes, abandoned her. She became a highly skilled multidisciplinary artist, creating an enormous volume of work most people, even people who have known our system for years, have never seen. For a decade, she kept a journal not unlike this blog which she, Castor, and occasionally myself wrote in almost daily. It reverberates with the full spectrum of human emotion, sadness, punctuated with joy, with deep currents of rage and willpower most people don’t attain until midlife. And that’s just the journals.
She was also an accomplished visual artist, turning to a brush and canvas when words failed her. She created a series of paintings in which she documented her various emotional states. Anger, her most common emotion – and the most forbidden to express during the time we were under Hera’s thumb – was her favorite piece. Its very existence was an act of rebellion. Slashes of black paint against large swaths of white space, which she knew Hera hated.
Anger (unknown year) by Allēna
The longer we work on our communication with like minded friends and partners, the more we unpick the years of trauma that kept the mountain of exquisite longing beneath the surface. We are very logical, yes, but we also have a treasure trove of emotion often stored in the body. The more we’re able to safely communicate it with people who can hold it with respect, the deeper we’re able to process and feel it. It’s deeply healing and freeing, and we’re eternally grateful to those who witness us. Thank you.
Howdy, everyone. My name’s Fen. I’m one of the super-admins here as of late, and I have some thoughts about family, both chosen and blood that I’d like to scream about a bit, as we’ve been talking with our girlfriend Sheik about the system’s early life a great deal and that got several of us thinking.
I see Millennials and Gen Z get a lot of shit for still living around or with their families, and frankly, I hate it. It’s complete and utter horseshit. Western culture prizes hyper independence to such an extreme degree that people forget now that we’re a fucking social species and have lived in huge multigenerational cohorts for most of human history. The setup we believe to be “traditional” – one man, one woman, and their children, living by themselves, separated from their in-laws and relying on none other but themselves – is a relatively recent invention and keeps people fucking isolated from other people they might otherwise form close connections with, share resources with, ask for help, etc..
Now, I’m all for monogamy and heterosexual relationships if they’re consensual, negotiated, and entered into willingly, but I myself am a committed pansexual polyamorist who inhabits a large system who made the agonizingly painful decision to distance themselves from the multigenerationalcohort they themselves were raised in due to years of abuse very few of those fucks were even willing to acknowledge.
Yes, for all of Hera and Xavier’s big talk of being independent, resourceful, and pulling yourself up by your goddamned bootstraps, they ironically raised Castor, Allēna, and the others in the system before me in an enormous extended family network made up of great grandparents, grandparents, great aunts, great uncles, cousins, second cousins, the whole fucking nine yards, funnily enough.
Neither of them would have gotten anywhere without both our maternal and paternal grandparents, who helped with damn near everything. Hell, Hera, Ms. “I’m The Most Normal, Independent Woman to Ever Live”, has never lived more than a thirty minute drive away from her parents and her sister for the body’s entire life. At last check, she lives next door to her parents and they knocked the fence between their land down so they could visit each other easier.
This by itself isn’t a bad thing. I simply find it hilarious that Hera was completely incapable of practicing what she so thoroughly attempted to beat into Allēna, independence and normalcy. Hera, that ain’t normal by today’s standards. Sociologically, it’s completely right, but it sure as fuck ain’t considered normal.
Once my headmates were estranged from them, they didn’t want a bullshit nuclear family type setup in the life they were going to build for themselves. Allēna’s first marriage to Fang showed her that she didn’t want that. Anything that even smelled like compulsory, possessive monogamy and the trappings that came with that were not her or the rest of the system’s thing. Even Eight’s very serious relationship with his beloved Delta, which is still very loving despite now being platonic, was very open and they both had a wide range of deep emotional connections despite being initially monogamous. They were possessive of each other, but only because they wanted to be. Eight loved Delta more than anything, and did his utmost to show it in every way he could, and they enjoyed it when he was possessive of them, and vice versa. They both came into the relationship having built fine lives of their own and gotten to know themselves and each other deeply, and most of the work there was learning how the other communicated best. It was – and still is – magical, in many ways.
When Eight and the rest of the system got into polyamory, they took what they had learned from the relationship with Delta and crafted that same magic, only with multiple committed relationships simultaneously. Perhaps the most interesting part of it all is that I’ve noticed that we’ve built that same sort of non-nuclear extended family network the original alters here were raised with, only with people we chose. We’re still close with a few members of our blood family, as well, but they were the select few brilliant black sheep who were good to us well into adulthood, so we chose them, as well. Our close friends are also an integral part of this web, and we don’t want to do life without a single soul present.
Our life is certainly not normal, but it is rich and full of color and joy. If you’re reading this, you’re probably someone we love and treasure. Thank you for being here. Your presence means everything to me and to my system. Always remember that “blood is thicker than water” is actually incorrect. The original saying is “The blood of the covenant is thicker than the water of the womb”.
Hey, everyone. This is Eight again. I’ve been feeling worse and weirder since I wrote last time, so I’m going to write about a topic many people have asked me about in the same sort of freeform, stream of consciousness style in the hopes that it will cheer me up a bit and maybe get me to follow my own advice, haha. I want to talk about how I built self-trust.
As you may know if you’ve been following this hell site for awhile, my system has quite the tragic backstory and deep lore. Allēna, the system’s host in our teens, was horribly psychologically tortured by our mother, Hera, to the point where she hated herself, in Hera’s effort to turn her and the system itself “normal”. It horribly backfired, because by the time I came to front as host in 2020, we saw through Hera’s bullshit completely and were done with her games. There was just one problem. We had no idea what the fuck we were doing. We had to get our fucking shit together. Fast. The body was pregnant, so I had nine months to learn how to not be a hot mess.
Allēna with Chaos Nana in 2015 long before our journey towards self trust began.
It was one hell of a crash course.
I barely had time to think or even breathe, but I had to make time or else I was gonna fucking lose it. My partner at the time, Delta, was in even worse straits, so a lot of the calm I found was for them as well as me, because I had to hold us both together during a horrible time in both of our lives.
So how did I build that self-trust? If you guessed deep-breathing to calm my body as the first step, you are correct. It was much needed to stave off a sense of near-constant terror. Hera and my estranged husband, Fang, put me through absolute hell during my pregnancy. There was a custody battle for my child before he was even born, and not knowing who I could trust outside of myself and a handful of others and numerous betrayals on Hera’s part resulted in a deep case of agoraphobia from which I haven’t recovered.
She owned the house I was living in with my beloved Chaos Nana, and her numerous abuses drove the system to the brink of attempting suicide because we saw no way out. Eventually, I decided around December that I wasn’t going to die, I was going to outlive all of my abusers who would disrespect me at my own funeral, and I was going to build a life that worked for me, fuck what anyone else thought.
So, armed with my reason to stay alive, I mastered deep breathing, and from there, determined that I was the only thing in this fuckshow of a pregnancy that I could rely on, so if I was upset about the state of things, I was going to change one (1) thing about either myself or my environment for the better, see how that made me feel, then move onto the next thing.
If I was sad and couldn’t figure out why, I would go find food. We determined early in the pregnancy that if we couldn’t go out to eat as often as we’d like, then goddamnit, we were going to get on food stamps and learn to cook the food we liked. Being raised rich gave us a very specific and refined palate, and Texas doesn’t skimp when it comes to food stamps for pregnant people.
When pregnancy put the body in so much fucking pain I could no longer walk, I swallowed my pride and rolled with the punches – and purchased my first wheelchair. If we didn’t like something, we’d take one step at a time to change it. I learned to accept my rage as a part of me that loved me due to a conversation with a very wise friend that winter, as well, and learned to trust it more than I trusted any human being, and learned to use it constructively.
I learned to set boundaries so that that rage didn’t consume me, and learned how to channel my enormous wrath into huge projects that got me through the harrowing next year of my life. I hated myself at the beginning of this process, but by changing one thing that I disliked about myself or about my environment and then moving on to the next thing, I didn’t get overwhelmed by looking at the whole picture all at once, and learned to accept myself in full in the process.
It wasn’t a perfect process, nor was I a perfect person. However, it worked, and it worked damn well. In moments where I felt insecure and alone, which happened often when I faced something I had never seen before, I reminded myself of all the times during this process that I’d figured extremely complicated things out that I’d never seen before and that I can and will find or make a way through this challenge, too. That approach helped me build a life that worked for me and mine without even realizing it, piece by piece. I only realized what I had done if I had the time and space to reflect, which wasn’t often. But over time, quietly, I began to trust myself because I had proven to myself that I was worthy of that honor time and again.
Because of that self-trust, which is now something close to implicit, I survived some of the worst years of my life. Nobody came to my rescue in major ways, but my friends and then partner came to my rescue in every way they could largely from a distance ten thousand smaller ways. In the process of cultivating that self-trust, ironically, I became the person that would have protected the system from the horrors they experienced when they were younger because I had the courage to save myself and begin to heal.
So if you’re struggling with self-trust, here’s my advice. First, take a few deep breaths. Six or seven will do well to start and will help you stave off your panic/anger/what have you. Next, change one thing for the better. Then, take a break, pat yourself on the back, what have you. Finally, once that’s done, rinse and repeat. Take it from a guy who had to build and rebuild this shit, piece by piece. The small changes are the pieces by which you build the life you want. They will snowball into bigger and bigger changes you’ll be able to make with greater changes once you’ve mastered the small ones. These changes are also a lot bigger than you think. The above is of the before and the below is of the above, so the changes you make will affect you profoundly in the long run. Godspeed, you lovely gremlin!
As always, stay tuned for more magic!
Eight, Chief Executive of Functioning ( am just kidding…or am I? Either way, I just made that title up)
Hey, everyone. This is Allēna, your ever-gracious super-admin (just kidding). I am here today to tell a special story by request of a friend. This is the tale of how we very nearly died the first and second times. We are masters at cheating death, and have quite the tragic backstory. My colleagues have also mentioned the fact that we had a stroke a few times. This post is the story of the stroke, or as we prefer to call it, the Brainhole. Now, I know that this is a crazy story. You might be tempted dismiss it as bullshit without witnesses or corroborating evidence. This is more than understandable. However, I have accounted for that and gathered some.
Apparently, we have followed in our father’s footsteps in a number of areas, and this blog is one of those areas. Our father, Xavier, maintained a website of his own for many years until his death in 2016. Eight accessed his account of our hospital stay leading up to the Brainhole incident in 1998 via the Internet Archive late in 2021. Although he has drawn the curtain and gone to sing with the choir invisible, he is our eyewitness for today’s tale, no séance required. Quotes from his account will be in italics.
Now, how the fuck were we cheating death as literal infants, you may ask? It all began with an unfortunate predicament known as viral myocarditis.
We Started Cheating Death Young When A Virus Attacked Our Heart
Xavier explained what happened best, so I will let him tell it. He wrote on January 27, 1998, at 3:00 in the afternoon:
Just wanted to let you know. My daughter is in children’s hospital in Dallas with acute myocarditis-an inflammation of the heart. It appears to be viral, and the prognosis can be good, but we will not know anything for 4 or 5 more days.
We will be up at the hospital for a while, so I won’t be current on my e-mail, but I will probably come home now and then and post updates.
We took her to the doctor’s office Monday morning at 9:30 because she had not been taking in fluids voluntarily for about 48 hours, and vomiting occasionally. She had a viral infection about three weeks ago that probably suppressed her immune response, and then contracted another virus that began to attack her heart muscle. Right now, the myocarditis seems to be principally viral in nature – as opposed to congenital, or congenital in combination with a virus. This is good. She is heavily sedated, and they have her on a ventilator. She can breathe on her own, but they are trying to let her dedicate all of her energy to fighting the infection. She has had two little transfusions (just to boost her hemocrit and hemoglobin levels by adding more red cells).
Stubborn Little Shits
We were admitted to Children’s in Dallas on January 26, 1998, Super Bowl Sunday of that year. Things quickly went south from there, though, and the doctors hooked us up to a heart-lung bypass machine so that our heart could rest and the machine could pump our blood for us. They initially estimated that it would only take about four days, but it quickly turned into a terrifying ordeal for all involved because we are stubborn little shits that kept fighting the damn sedatives. So it quickly turned into a game of hurry up and wait.
Eight quipped when he read through Xavier’s account the first time that he could make a drinking game out of it: take a shot for every time they had to chemically paralyze the body. You’d be absolutely hammered by the end of it. We got so good at fighting the sedatives that our medical team had to start putting us on some crazy dosages to even attempt to keep us down.
According to everything we were told growing up, we were on enough meds combined to knock out every single adult present for an untold number of hours. Xavier himself mentioned that a single one of our boluses (boli?) would incapacitate him for ten hours, and he was not a small man. We also had to be restrained by tiny handcuffs because we’d wake up, wiggle, get pissed off, and try to grab shit. Additionally, Xavier wrote in his account that we had to be put on methadone to ease the withdrawal symptoms from the painkillers they had us on. We were not going to die, by gods. We were cheating death every goddamned day. No day more so than February 23, 1998, a day we now “celebrate” annually as Brainhole…
All Hail The Motherfucking Brainhole
After getting off of heart-lung bypass and weaning off of most of the meds, we had a sepsis scare. Now, the scary thing about heart-lung bypass is that there’s a very high risk of stroke if things go wrong because the procedure uses a carotid artery to even work. After we were all finished with the heart-lung bypass, they had to clamp and tie off the carotid artery they used. They used the one on our right side. Shortly afterward, there was a sepsis scare.
Xavier tells the story of what happened best because he was there and documenting everything that happened, so I’m going to let him do the talking again. He wrote the following day, February 24, 1998:
“Brief synopsis of yesterday. It doesn’t look like it was sepsis. She got
better too quickly for it to have been sepsis. She responded well to the
intubation and the medicines, but the staff feels that this was an example of
how little cardiac reserve she has. In short, her heart was tested, and it
did not do very well on the test.
We met again with Dr. Fixler, the head cardiologist on the transplant team.
He informed us that [Hera] and I have the option of increasing her status on
the transplant list. Basically, if [Hera] and I feel that a transplant is
inevitable, we can ask that they not refuse a heart that is available.
That was yesterday.
[Hera] and I went home to get some decent sleep last night and left
instructions to call if anything happened. They called us at 3:30 a.m. to
tell us that she had taken herself off of the ventilator by pulling out the
tube. Her oxygen saturation level was fine, and she was breathing on her own.
Considering that [the cardiologist] wasn’t sure if she could
ever make it off of the ventilator, we took this as good news.
[The cardiologist] called at 7:30 this morning to say that [birth name] has apparently had
a stroke. The movement on her left side is diminished. The theory is:
[birth name]’s heart function is such that there are areas where the blood doesn’t
move as effectively as it should. When the blood pools, it has a tendency to
clot. A clot (or a piece of a larger clot) that had formed in her heart broke
free and plugged one of the vessels leading to her brain. Considering that
the major artery to the righ side of her brain is severed and tied off, the
clot either passed through the other artery, through the Circle of Willis, and
lodged in a vessel. Either that or it passed into one of the collateral
vessels on the right. They are not yet sure what the extent of the damage to
her brain was as yet. They are performing an echocardiogram to determine if
there is another clot in her heart, and they will perform a CT scan right
after. After that I we talk to the neurologist and find out what has
happened.
Names in brackets have been changed for privacy purposes.
The initial scan showed that we had lost up to half of our brain. However, a scan a bit later and an MRI in 2009 showed that it was only an eighth. We lost much of the sensory processing center in our right brain. It took years of physical and occupational therapy to be able to use the left side of our body even slightly. We still have trouble eating and sleeping. Our arms are noticeably different lengths, and we can only move three fingers on our left hand independently of the others.
Cheating Death and Betting On Ourselves
However, doctors thought we’d never even recover to a fraction of the extent we did. Nor did our own parents. Hell, Xavier even jokes in his next post about what sports we might be able to play with only one side of our body. Nobody really ever bet on us until adulthood. However, we always bet on ourselves. I went on to run a 5k in college and was an avid cyclist. I played basketball and bowled throughout high school. Eight and I were even training for a marathon before chronic pain and fatigue sidelined those dreams.
And though we were singing before we could talk – before the Brainhole ever happened – nobody thought we would ever learn an instrument, either. To hell with that bullshit. I fight people’s expectations of me just as hard as the tiny system fought those sedatives all those years ago. I went on to teach myself piano and ukulele, learned to produce records, and my headmates followed suit. To date, we’ve collectively produced fifteen records (that we can find). We’re hard at work on our sixteenth release. Moral of the story: if anyone tells you you can’t do something, flip the fucker the bird, then do it sixteen times and take pictures. These are the rules. I don’t make them. I just follow them.
Mirthy very belated Brainhole to all, and as always, stay tuned for more magic!
Hey, everyone. This is Firrian, once again on the acting captain hot seat. Unfortunately, we seem to have made no headway in the sleep deprivation department, so this should be a rather short post if all goes well. I’m fucking exhausted. That said, one of my headmates, Tindwyl, was talking with a new friend of ours about nostalgia and that got us thinking.
Nostalgia? Never Heard of It. Or Have We?
Initially we couldn’t find anything we were nostalgic about, but then the Shins’ cover of “We Will Become Silhouettes”, originally by the supergroup the Postal Service started playing on our excellent East Coast themed playlist, and that gave me an idea. We are nostalgic about some things, just not the things most people are typically nostalgic about. We don’t miss family Christmases or vacations with our brother or anything like that. We have far too much Tragic Backstory for that sort of thing. Tindwyl has even taken to calling this blog our incident report because of how much we talk about our complicated lore here. My poor headmates.
Give Up
That being said, we do feel nostalgic for the spaces we made in childhood and young adulthood by ourselves for ourselves and our friends. These were sacred times and places nobody was allowed into except by our decree. Listening to that Postal Service album I mentioned is one such example. We are a strange combination of resourceful Luddite and tech wizardry because for the longest time, we were forbidden from accessing the internet on weekdays when school was in session.
So we learned to get around that shit in any way we could because we need music to function. This turned into a fully fledged obsession with hoarding hard copies of media. We’d listen to Pandora Internet Radio on the weekends and on vacations from school obsessively, and then check hard copies of whatever we liked out at the library so we could listen to music on the go using a portable CD player from maybe 2002 at the earliest. No internet needed.
We must have checked Give Up by the Postal Service out twenty times. We were fucking addicted to this record. We’d often hole up in a bathtub that was empty save for a thin blanket in the summers and devour entire novels in the summers while listening to that album over and over while the cold ceramic cooled our very heat sensitive body off. I find it hilarious that we were playing an album called Give Up over and over because I assure you, we had most certainly not given up.
Give Up by the Postal Service, both an object of teenage nostalgia for us and also a major source of inspiration as Allēna learned to produce music.
This Place Is A Prison, But Our Nostalgia Sure Isn’t
Another very sacred place that holds a lot of nostalgia for us is our creative process. Allēna, our host in the body’s teens, wrote her first real song when we were only eleven and quickly set her sights on recording music in a studio. Not only that, but she wanted to produce it all herself. So by the next year, she had put together a demo her own damn self that she’d recorded by hand in her house on her laptop using Sony Acid.
By thirteen, she’d secured a record deal and was recording in a studio with a producer she observed extensively. When she wasn’t in Dallas shadowing him and recording with him, she was researching techniques, building her own bedroom studio, and experimenting with her own production style with the things she was learning. She let very few people see her process, as she was a very anxious perfectionist and secretly worried that her work would never actually be good enough.
Her mother didn’t help with that, either, and she didn’t want what she was making criticized to pieces before she even had a chance to finish it. Nonetheless, by the age of sixteen, she’d created enough work she was proud of to release an extended play that she’d made entirely herself, Fletcher Coming Home. However, due to her soul crushing anxiety and perfectionism, she delayed releasing it officially for another two years, instead releasing a handful of singles first to test the waters. Her childhood was a prison, one almost entirely unworthy of nostalgia, but by the gods, she was going to write, sing, and fucking claw her way out of it if it was the last thing she did.
The Luddite Gift
An unintended consequence of giving the born fighter Allēna such a restrictive childhood is that the girl was both relentless and clever and refused to let her lack of Internet access hold her back from making friends and being social. It gave her both unprecedented managerial and administrative skill and taught her how to use her time wisely.
She couldn’t market her music online, obviously, so she shamelessly plugged it to everyone she met, both in school and at church. People were drawn to this brilliant, reclusive enigma and wanted to both know and hear more. In the absence of social networks, she built a real world network of people that she was deeply invested in and who were deeply invested in her.
She showed off constantly by performing live at church any chance she got, which brought her powerful voice to new audiences constantly. She was a charismatic force of nature offstage, as well, and church became a refuge that she looks back on fondly for the real world social aspects of.
Legendary Partying With Greater Efficiency
When this involuntary Luddite finally joined the ranks of social media in her mid teens, everything simply became bigger for her and more efficient – and easier to hide from her parents. Her already massive social circle tripled in size as she got older, and as she threw parties with her brother, she took a risk and merged all of the different smaller groups of people she ran with. She learned something interesting here.
Many of her friends got along swimmingly, even if they had never set eyes on one another before in their lives, and these parties quickly became the stuff of legend. She heard from her friends’ parents on several occasions that an invitation to these partieswas highly prized and many of their children had met close friends there that they would never have met otherwise. Allēna discovered that she had a gift for connecting people and helping people of various backgrounds find common ground.
She was a brilliant organizer and people saw that. She could get wallflowers front and center playing Twister with people who were complete strangers five minutes prior. Shy anime nerds found fast friends in gregarious library assistants while sparring with sticks from the pecan tree in our front yard. This is our nostalgia. We created it, and it is ours.
Conclusion
Okay, I seem to have lied about this being a short post, haha. I don’t mind. This is totally worth it. I have no clue what the next post will bring, but I’m excited for it, whatever it is. Stay tuned for more magic (and incident reports)!
Hey everyone! This is your boy Eight once more. We took a short break from writing yesterday because we took a lot of emotional damage from writing Part 3 the other day. Kalla handled Part 3 since she wasn’t directly traumatized by any of the events of “Guernica”. However, she felt deeply for Allēna and her teenage plight and still sobbed while she wrote it. So a break was in order. I’m back today to discuss “Guernica” Part 4 and how Allēna held both the visceral and the beautiful in equal measure and alchemized her pain.
We’re gonna do this the same way we did the other three parts (which you can read here, here, and at the link above respectively). I’m gonna show you my performance, then the section’s text, and then I’ll break it down for you. As previously stated in the other posts, you can read the full poem in our collection Singing Molten Gold To The Morning. Without further ado, “Guernica” Part 4!
“Guernica” Part 4: My Performance
I perform “Guernica” Part 4 for y’all!
The Text
guernica part iv.
you can paint darkness and you can paint conflict but there’s only so much you can paint if you have never experienced it i want to paint as much as i possibly can. etxea is the basque word for home and i find home in things that hold no home for others. i feel heard in horror stories and seen in the shocking and visceral. i’ve made mansions out of sadness and i destroy the happy ones because something in me says i don’t deserve them. fuck that something. fuck that something.
i’ve seen enough and yet i haven’t desperation guides my lungs and my mind. i’ve had enough. this is why i write now. when i was 12 they called me selfish i think in hindsight it was because i wanted love and they couldn’t give it to me so i fought with the wind. i knew i couldn’t chase it so i fought it. i fought anything that moved for so long and so hard that i forgot how to make peace. it kept me alive.. when i was 7, my dad got sick and i think that was the beginning of the end. that was when the war began and it didn’t end not until i was 18 and by that time, the damage was done.
when i get sad, my inner child screams and cries and wants love from people unable to provide it. i wish one of them would’ve told me i was okay instead of pretending i was the bomb in the corner or the crazy one in the attic the scapegoat, or the black sheep.
i’m not crazy. what they did was wrong. sometimes you’re the airplane high in the sky the reason why they don’t look up anymore and for a long time that was them. i look up now to spite them and ask where their god is now now that they’ll make their own hell someday and have no one to wipe their bloody hands on.
I Look Up Now
The gorgeous crystal blue sky Allēna would gaze up at to spite her family around the time she wrote “Guernica” Part 4 (with some light edits added for pizzazz), June 2019.
My Thoughts
Like we’ve said in many other posts, we were born fighters. “Guernica” Part 4, to me, sings to me like victory, a victory incredibly hard won. Part 4 marks the transition from victim to victor. She starts to go from someone who had always cowered in fear and allowed others to control the narrative to someone who owned her damn self, owned her voice, and owned her demons. This is the voice of a poet who says “Yeah, I’ve been through some fucked shit, but I’m a powerful alchemist. And goddamnit, I’m going to turn this pain into a powerful story. The world will know what they did to me. The world will know where I came from and where the fuck I’m going. And news flash: it’s a far cry from this hell you people dragged me through.”
Around the time she wrote this, she was beginning to understand that what her mother’s family had done to her was terribly wrong. She didn’t deserve an ounce of that torture. Three things set her down that path to self discovery – the first kind and skilled psychiatrist she’d ever had, the novella Fahrenheit 451 by Ray Bradbury and some very important friendships.
Hera’s Plot Begins To Unravel: Allēna’s Compassionate Psychiatrist
You may recall from an earlier post in the series that Hera, our mother, had essentially press ganged us into a medication regimen we didn’t need in an effort to get Allēna, who was the system’s host at the time, to be more compliant and easier to mold into an image her and her family wanted her to be. She vehemently denies this to this day, but she’s lied about everything else up to this point. This is the only explanation that makes any sense.
By the time she even married our first husband, she was on enough of these psychiatric medications to be about a quarter dissociated at all times. Her previous psychiatrists had her on dangerous levels of three different medications – lithium, lamotrigine, and Abilify. All three of these drugs are mood stabilizers. Lithium is essentially a pharmacological lobotomy, and is very harmful for a developing brain. She was put on it at the age of eighteen. I got the body off of it at 23, and mercifully our brain recovered. I’ve heard that most people aren’t so lucky. Often the damage to the thyroid and the resulting cognitive dulling is permanent.
A Chilling Concern
However, the lithium wasn’t what our very compassionate psychiatrist in Alaska was concerned about, which I frankly find telling. She was concerned about the lamotrigine. Upon meeting with her for the first time, she informed Allēna that she was on the highest dose of lamotrigine she had ever seen in her entire career. This woman had been practicing for longer than we’d been alive. She asked Allēna if she could remember how or why her dose was so high.
Our psychiatrist looked like she had seen a ghost when Lēna informed her that no, she had no clue. The dose she was on just wasn’t working, so her doctors kept raising it, often at Hera’s insistence. Hera would often come to our psychiatrist appointments and speak over Allēna, which would piss her off. Then Hera would turn around and use her reaction as evidence for why the dose should be raised.
Sick And Fucking Tired of Hera’s Bullshit
Allēna hated that Hera came with her to most of her appointments, had access to her medical information, and ultimately went to great lengths to keep Hera out of most everything. Hera believed she had a right to control Allēna’s medical care, psychiatry especially, since she was the one paying for it. Privacy laws could get fucked, in her opinion. Her money, her rules. Allēna hated it and hated her for the reactive abuse and other abuses of all stripes.
She didn’t want the meds at all or deal with another adult meddling in her life. Hera had inserted herself into our affairs our entire life and we had been sick of it since Castor was host at about the age of five. She wanted to have a conversation with Hera, adult to adult, about her abuse. But Hera would never do it. So she kept as much from her as possible, which wasn’t very possible in a house in which she had little to no privacy.
Shaking Off Her Chains
Getting out from under Hera’s thumb and finding a psychiatrist that listened was an immense relief. But it did Hera no favors. As she worked with her psychiatrist to come down off of the meds, she found herself viscerally angry at Hera. She cut her off and made her wrath no secret. This took immense courage on her part, as Hera was well-connected and had eyes everywhere, including in Fang, which we’d find out later.
The Next Piece of “Guernica” Part 4: Fahrenheit 451
The next inspiration for “Guernica” Part 4 came about by chance. Allēna was working as a tutor when she wrote the poem. A potential student reached out, asking if she could lecture on Fahrenheit 451 by Ray Bradbury. She agreed, despite having never read the book. So she devoured it in preparation for the lesson, which never actually ended up happening. However, the book changed her life. She saw herself in the characters and the sharp, quick prose.
She saw how the characters who thought for themselves and read books were persecuted and their possessions burned – and saw her life story in the narrative. Hera homeschooled us for most of our education, and taught us how to critically think and analyze literature. Hera herself had a background as a professional seventh-grade English teacher, and was just as masterful a teacher as she was a cold, abusive, and emotionally absent mother. It’s because of her that we can write blog posts like this. She started us very young. Yet, she punished us harshly when we used those skills to criticize the way she treated us. What a cruel, ironic turn of events!
Allēna found solace within the pages of Fahrenheit, a sort of solace we’d not found in many years. I think the last book she’d related to that hard was Ender’s Game by Orson Scott Card. Card’s politics and beliefs aside, Ender‘s Game is a harrowing illustration of what it’s like to be young, gifted, different, and traumatized, much like Fahrenheit is. We still want to get Fahrenheit’s opening line tattooed on the body somewhere. It was a pleasure to burn…
A Resolve Stronger Than Iron
What she’d found in this book and in turn, in herself, strengthened her resolve. She told her story without shame and spat in the faces of anyone who told her she should make up with Hera and consider her perspective. Hera had betrayed her repeatedly. Why should she? She’d had Hera’s perspective shoved down her fucking throat her entire tenure as host. She could recite all her talking points verbatim by that point. Hearing them again was a waste of time and would only piss her off. Hera wanted to control us, and by then, Allēna couldn’t be bothered to give a damn. She had seen Hera for who she was, a conniving snake, and we’ve never given two shits about people like that. Why waste her time on a person who’d only betray her again as soon as she found an opportunity to do so?
The Final Seed of “Guernica” Part 4: A Little Help From Her Friends
Yes, Allēna and the rest of us didn’t want to waste our time on traitorous bitches, but there were many people in our life by that point that were worth our time and effort. Beginning in early 2019, Allēna started making many friends online once it became clear to her that she wouldn’t have much luck making friends locally. Many of the local townsfolk were polite, but just as withdrawn as Fang. She wasn’t going to get anywhere in person with Fang as jealous and controlling as he was, either. If someone even looked in our direction with what looked to be romantic or sexual intent, he’d lose his fucking shit and go as far as to blame Lēna.
So she struck out on her own online and simply stopped introducing her friends to Fang. He’d inevitably start heavily criticizing them behind closed doors, as well. It was no fun for anyone, so she kept her life to herself and stopped asking about his, as well. She wasn’t going to give a flying fuck about someone’s private life or creations when he clearly couldn’t extend the same courtesy.
A Cradle of Masterworks
Many of her friends showed her and later Peri what healthy love actually looked like. They treated her far better than any partner ever had and expected nothing in return except her presence. They were also genuine fans of her work and encouraged her to write and share to her heart’s content. It was this supportive semi-secret virtual environment that helped Allēna begin to process what Hera and her cronies had done to her. Through this process, “Guernica” Part 4 and the full poem spilled out of her.
Peri’s magnum opus, The Secret History of Doloras, was born a few months later in the same supportive cradle. We attribute the fact that our album Light on the Final Day saw the light of day (ha!) at all to one especially loving and persistent friend all the way across the world, as well. We would have never found our voice or the courage to alchemize all of our deep, deep pain without the support and love our friends gave us.
Parting Thoughts on “Guernica” Part 4 (another pun, haha)
In my opinion, Allēna is exceptionally brave. Not only did she stand up to our formidable spymaster of a mother for the first time in our entire family’s history, she persevered through severe neglect and abuse of all stripes and found the guts in the meantime to turn that pain into something aching, visceral, and profoundly beautiful. I fucking love this poem and respect the hell out of my fiery pint sized headmate. I wish she’d had an easier lot in life, but I don’t know if we’d be half as insightful as we are without it. There can be no wisdom without experience and no pain without beauty. Allēna, sweet woman, is one of the rare few that is able to see beauty in the horrible things that happened to her and use these gems to craft a new story, one of resilience, courage, defiance, and ultimately – magic.
Speaking of magic, stay tuned for more of THAT. Part Five is coming up before you know it! Are you ready for another kick in the pants?!
Bastardly yours, Eight
Before you go, we’ve been WebFingered (Jesus, that joke never gets old!) and have triumphantly entered the Fediverse! Follow us @opensorceryy everywhere that’s federated!
Hey, everyone! My name is Kalla. I’m one of the alters in the Ashley system. I haven’t posted here before, but I think having a cool space where we can write about what the fuck ever is a pretty neat idea, so I want to put my two cents in where “Guernica” Part 3 is concerned.
It’s also a bit too soon for the other alters to write about this shit, as many of them consider Part 3 to be the most gut-wrenching and soul-searing part of the poem. So I have stepped in to get them through this fucked up block they’re having and maybe process some of the grief on their behalf. If you are just now coming across this series in the wild, you can find Parts One and Two here and here. And as previously stated in the posts Eight and Ellie wrote, you can find the full poem in our poetry collection Singing Molten Gold to the Morning.
I think this post will follow roughly the same structure of the others – Eight’s performance first, then the text, then my thoughts on it. Without further ado, “Guernica” Part 3!
Eight’s Performance
Eight’s performance of “Guernica” Part 3.
The Text of “Guernica” Part 3
guernica iii.
airplanes up in the sky..
i know airplanes.
of course i do.
sometimes you’re the bomber,
sometimes you’re the little town in basque country
down below.
i like to think god laughs at tragedy
so that at least someone finds it funny.
but a brain is the bomb
and there’s a cruel irony in it eating itself
when it was the best brain i’ve ever known.
the roads were clogged with rubble and there was
no way out
there never was
not when the brain is the bomb
and you’re the little town in basque country
down below.
not when the brain belonged to your favorite person
and the bomb is also a death sentence in an MRI scan
and the execution date is to be determined.
so many bombs
making a hole in a heart
so deep that i’m still trying to find the bottom of it
(there’s no bottom)
but i will not die here when i’ve died 10 million times
already and i’m choking on this metaphor as i write
no harm in 10 million and 1
Allēna, summer 2019.
Our father, Xavier, whose death at the age of 47 from brain cancer inspired “Guernica” Part 3 with baby us in what must’ve been fall of 1997, early 1998.
My Thoughts
“Guernica” Part 3 is about our father, Xavier, dying when we were 18. He had brain cancer for eleven years. It was a shadow over our entire fucking childhood.
We knew Xavier was going to die from the time we were seven years old. This wasn’t due to any kind of intuitive knowing. He collapsed at the gym a few days prior and fell into a tonic-clonic seizure. He found out what had caused the seizure a short while later, a brain tumor.
We weren’t shielded from any of that. Our parents sat us down at the round kitchen table in the rumpus room and told us everything, sparing no details. This was a terrible burden for a child to bear, especially a highly intelligent child who had already seen too much pain by the age of seven. We had already attended more funerals than weddings, and would go on to lose even more people we deeply loved before even losing him.
A Death Sentence In An MRI Scan, And The Execution Date Is To Be Determined
In 2013, when Allēna was already battling the beginnings of a severe depressive spell that would make her crave death for the better part of the next decade, Xavier got even more terrible news. He went in for a routine MRI scan to see if his tumor – named Cuato by then – had grown any larger. The oncologists came back with good news and bad news. The first tumor hadn’t grown any, but they had found a second one. It turned out to be completely separate from Cuato, called a second primary tumor. This tumor was far more aggressive, and he was given months to live. Though he shattered expectations and went on to live for another three years, this was a death sentence. Allēna had to watch her brilliant father, one of the only people who had ever made her feel understood,
Allēna practically gave up on everything. Xavier was everything to her by that point. She describes the last few years of Xavier’s life as being trapped beneath a sword that is held by a fraying rope. At any moment, that rope could snap, and the sword would fall and impale her.
Suffering Alone And In Pain
Hera became colder the worse Xavier got and the worse Allēna fell into her depression. Without Xavier as a buffer anymore, Hera emotionally, mentally, medically, and occasionally physically abused Allēna. Hera began to massively overmedicate her with psychiatric medication so that she wouldn’t fight back anymore. She used Xavier’s worsening condition as a justification to do the bare minimum and emotionally abandon her when she needed support most.
So for three years, Allēna watched her father wither away, unable to tell anyone about what she was suffering at home. Hera explicitly forbade it and would hurt her worse if she tried. She dealt with a terrible bout of mononucleosis in early 2014, as well.
During that ordeal, she had to diagnose and treat herself for it. It turned out that she had actually gone to the doctor too early. The tests she’d gotten came back with a false negative. It was only when she presented with acute pancreatitis a few months later that they actually found the antibodies in her system that indicated she had had mono at all. By that time, Hera had written her now chronic exhaustion and pain as hypochondria, mental illness, and a ploy for attention.
We still haven’t recovered and are still chasing diagnoses a decade later. We suspect that the bout of mono may have given us lupus, an immensely painful and debilitating chronic illness that is notoriously difficult to diagnose. However, both Hera and later Fang wrote Allēna off as a lazy hypochondriac who just didn’t want to do her work, abandoning her to suffer alone, terrified, and in unimaginable physical and psychological pain.
Like The Sun Itself Went Out
Hera’s abuse and Xavier’s impending death psychologically shattered an already fragile Allēna. When he passed away on February 5, 2016, she felt nothing for five days. It hit her at breakfast back at college on the fifth day.
She describes losing Xavier like it was as though the sun itself went out. Her world became dark, cold, and completely and totally lonely. It took every ounce of strength she had just to drag herself to class and back. She told her professors what was going on, and most of them took mercy on her. She could communicate with her Ancient Greek professor that she was having a very hard time that day with just her eyes. This professor, who we’ll call Ms. Melitta, was a very kind and perceptive angel of a woman, and she outright pleaded with Allēna to go easy on herself. She told Allēna she was proud of her just for showing up even when in her words it looked like she “wanted to be blotted off the face of the Earth”.
Allēna, whose family and life up to that point had always pushed her past her capacity to handle it against her will, had never received that kind of grace before. She broke down ugly crying. It was a balm to her weary, brokenhearted soul. She credits Ms. Melitta and others that year for saving her life. She was seriously contemplating suicide at that point, was sick all the time, barely eating, and was an all around disaster. It’s a miracle in her mind that she still has friends from that college, she was such a disaster.
I Will Not Die Here
At the end of the year, when her professors all gathered to give her her closing remarks, they almost all agreed that they admired that she almost always showed up to class, even if she couldn’t manage to stay the whole time or say or do much at all. Even during one of the most painful times in her life, Allēna kept showing up and putting in an effort through tremendous difficulty, and many of them held her in high regard for that. She had never received that sort of kindness and praise before, and it helped her keep going and not give up.
Showing up became a pattern for all of us. We joke that we “appear under mysterious circumstances”. If we say we’ll be someplace at some time, we will be there and early, come hell or high water. Xavier taught us that nothing less will do. Eight did this when he got his job in Philly – he said he would be there in Philly on Monday the Friday before that in Texas, and there the fuck he was on Philly on Monday, early. Nobody in the office thought he’d even show up, considering he’d have to travel over a thousand miles and move in less than a week to take this job. But that’s the way we were raised, and that’s what we do, obstacles be fucking damned.
We will not die here, we keep saying. We have shit to do. And die we don’t, even though there are often close calls.
Stay tuned for more magic and for Part 4! I’m gonna go to sleep soon, I cried my eyes out writing this.
Love, Kalla
One more thing…
Wait! Before you go, we’ve been WebFingered (haha, gottem) and we’ve joined the Fediverse. We’re opensorceryy@opensorceryy.co everywhere that’s federated. Give us a follow?
