Tag: medical research

  • Lost In Time And Space

    Hey, everyone. This is Lazarus, once again. As I write this, I’m sitting on my apartment’s balcony space so that I can get a bit of fresh air. At Emerson’s suggestion, I took today largely away from the Internet to clear my head, but it seems to have made me sadder, albeit less anxious. I’ve spent a great portion of today deep in my head strategizing and things, but I feel disconnected from the world in a not so pleasant way, sort of like I’m lost in space and time. So if I am going to go all in on disconnecting, I think I need to make a better plan so that it doesn’t make me feel worse and adrift. So now I’m drafting a blog post in my notes app that I will post when I come back online again. 

    I shuffled through a deck of prompts that Emerson has, and found one that is going to be a doozy to contemplate and write about, but I think ought to be addressed head on anyway. It goes a bit like this: “Wonderland: You always have your imagination. What is something that you want to achieve, but probably never will?” I know I’m probably not quoting the prompt verbatim, as usual, but it gets the point across, I think. I’m also probably going to cry as I write this, in all honesty. 

    I would love to be abled, or at least accommodated to such an extent that I could function enough that I could do a great deal more. I know that’s probably the remainder of my hyper independence talking, but I grieve what I used to be able to do every day. I hold my need for rest and greater peace and my fervent wishes for greater independence, to contribute more, to push past what is holding me back, and to build bigger and greater things simultaneously and I try every day to let the peace and rest win because I know that ultimately that is the only way I will be able to contribute more. 

    I can’t do anything meaningful if I’m running on fumes and pushing myself to the point where I’m very nearly dead. It’s a strange paradox that I tend to ignore when I’m anxious, angry, and/or craving movement and release. I can only really see the nuance and appreciate the paradoxical nature of healing and the true way forward when I’m calm and able to recharge myself. But still, I grieve. I miss what I was able to do before illnesses, trauma, and injuries took all of my independence away from me, however unhealthy and against true human nature it actually was. 

    I keep having to remind myself through all of this that my rest and the creative work I’m doing is still an action, that even though it looks like I am doing nothing, it’s still an action, it’s still a choice. I’m still doing something. 

    Even when I’m doing research, writing, or art from bed or sitting down, I’m still doing something. I’m never doing nothing. Reframing my perspective around rest, art, and leisure from doing nothing to doing something has helped improve my quality of life and mental health a great deal. 

    And when I keep that perspective in mind, it has helped me relax a great deal more and make rest and leisure a much easier and less anxiety inducing choice to make, as I often have to fight my anxiety, which paralyzes me when it comes time to rest because I feel as though I have done nothing all day even when that simply isn’t true. I’m resting, an action. I’m making art, an action. I’m watching TV, an action. I’m talking to my partners and friends, an action. I am cuddling my cats, an action. I’m blogging, an action. I’m doing medical research, an action. When I think about my behavior that way, it becomes far less paralyzing to do…anything because in my mind, all actions start to carry equal weight, no matter what they are, because they all carry an element of conscious choice and autonomy, and none of them are nothing. 

    They may have different impacts and implications on the people and situations around me, and I can change my behavior accordingly based on what I observe, but none of it is meaningless. It also does wonders for my perfectionism when I keep that in mind, which is also rooted in anxiety. I just need to work on keeping that in mind… 

    Speaking of research, I may have made a breakthrough last night. I have been experiencing a great deal of numbness in my right hand and on the sides of my face particularly the right side, as well as fatigue, which drinking saltwater or eating salty food almost immediately resolves. I’ve also had shitty circulation for most of my life. So I started wondering due to a longtime suspicion that I have postural orthostatic tachycardia syndrome or POTS, that my blood pressure might be low running low regardless of how my body is positioned due to severe and prolonged stress and heart damage. 

    So I did a bit of research last night that tentatively confirms that theory. It also gave me a new theory that my blood pressure dipping especially low in the mid to late afternoons into the nighttime is causing severe fatigue that’s gotten worse as the temperature has started falling as winter approaches. Time for new experiments! 

    That being said, the vitamin B is still massively improving my mental health at a baseline, and likely keeping my blood pressure at a lower level than it would be normally since it is normalizing my mental health and keeping me more stable than I would be without it. So I wonder if I need to start making feta cheese a staple of my diet like I did when I was younger. Feta is about the saltiest thing known to man, second only to a rock of salt itself or possibly brine. I love feta cheese. So let this be a public service announcement to any suitors or partners looking to win my heart or make our relationship even better – load me up with that good shit. It’s my favorite, and it may literally improve my health in the process 💛 

    Yay for doing health shit myself! I think that’s enough pondering the mysteries of the universe or at least the human body for the day. Stay tuned for more magic, y’all. I’ll be around. 

    Your (not salty enough) sorcerer, Lazarus 

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  • At Last, I’m Found

    Hey, all.

    This is Lazarus again.

    In 2021, I was talking with my friend Delta about all of the shit I was going through at the time while deep in survival mode and about being an Enneagram Eight largely geared toward self preservation, and I predicted that once I got out of survival mode and was safe, I would sort of… collapse. I would have no idea what the fuck to do with myself and kinda deflate and go more or less catatonic. That prediction has turned out to be more or less accurate most days.

    As my life has stabilized, I find myself with less and less to solve and fewer fires to put out, with many of the remaining problems largely outside of my control and completely outside of my power to fix or help with. In short, most days, despite having the stability I worked so hard for, I feel more lost and adrift than ever. I have been sleeping a lot. I just don’t have much desire to do much, and I do the rare activity when the mood or inspiration strikes. My general state reminds me a lot of when I lost my dad, Xavier, back in 2016.

    I wonder a lot if I’m subconsciously or somatically grieving all of the bullshit of the last three or four years or perhaps even longer because of how badly the wind has been knocked out of me. I barely even have energy to reply to a fraction of the dozens of messages on the various messaging apps I get daily, and I am trying to move away from feeling so bad about that because realistically I just can’t right now. That’s the plain and simple fact of the matter. I only really respond to people and reach out or have my phone nearby at all if I feel up to it, which is rare, and I have been trying to strike a balance between isolation and social time so that I don’t fall off the face of the Earth completely. I don’t want to fully withdraw or even withdraw at all, but my brain and body have been demanding that to some degree, and I’m going with that rather than fighting it so as to not make whatever this is longer and worse.

    On the subject of recovery, I did a bit more research on what the underlying cause of my symptoms might be that have been making my body and mind feel so damn out of whack, and came up with a decent theory that my thyroid might have gotten ever so slightly cooked due to Hera’s batshit DIY MKULTRA scheme she put me through, and the HRT I’m on combined with the years of stress has been making it go, ah, ever so slightly haywire.

    So I found some scholarly research that said that thyroid patients suffering from both hypothyroidism AND hyperthyroidism benefit from taking various forms of vitamin B and thiamine for their chronic fatigue especially. Luckily for me, a former friend of mine had send me a bunch of supplements she wasn’t gonna use late last year and among them was a B100 complex supplement. So I decided to test my theory and give this shit a try and see if it did anything for my fatigue and other symptoms.

    Well, it appears to be doing a fair bit. I’m about five days into the test and my brain fog and pain is leagues better. It appears to be helping my lack of object permanence and executive function, as well, giving me some semblance of both. I have also noticed that I’m not super overstimulated by huge amounts of sound, nor does silence understimulate me as badly. I can sit in silence for far longer without my mind itching for music or internally screaming. It may also be helping with the flashbacks, as well, but that’s to be determined. I will need to continue the test for longer to see if it has any significant effect there. So perhaps my fried thyroid theory holds water. I will need to address this with my doctors next time I can spare a brain cell, haha.

    I’m also far less angry and my headaches are gradually getting better as I work through my anxiety, as they appear to be triggered by anxiety and moments of emotional distress, which the B100 appears to be lessening as a baseline. Yay for House MD-ing myself at home! I just love being an AuDHDer with a special interest in weird ass branches of medicine who was practically raised by doctors, hahahaaaaa. (This is partly sarcastic, partly genuine. Specialized knowledge and deep somatic intuition saves lives, don’t let anyone tell you otherwise, it’s just annoying that my body is so weird and there are so many things that the medical field as we know it doesn’t explore without months of waiting or you have the charisma of a fucking god).

    Seeing as there are a lot of positive effects even through the semi-catatonia and the semi-catatonia predates the B100 test, I don’t think the B100 complex is the culprit here. If anything, the supplement appears to be helping. I’m just probably processing years of grief somatically that I’m not entirely consciously aware of.

    So that leaves a large amount of time to fill as I heal that would ordinarily be spent in agonizing mental or physical pain, parsing my way through interpersonal trashfires, or recovering from the aforementioned problems. That huge amount of time to fill raises some incredibly simple, yet profound questions that I’m currently exploring the answers to: what the fuck do I do now? What actually makes me happy now that I’m living more out of love than out of spite and my brain and my body aren’t fucking screaming 24/7?

    I know I love writing on here and writing in general. I am deeply proud of myself for having a space that is mine that I’ve maintained for months now even if I can’t post daily, and that does a lot for my quality of life. I like having spaces that are mine where I can express myself with the people that I love that would be very difficult to take from me or from them. I know research and engaging in my myriad special interests lights me the fuck up. Emerson raids the local Little Free Libraries like the adorable gremlin he is and often spoils me by bringing books back about topics that he either knows I’m fascinated with or that he thinks would catch my eye, and I do indeed feel very spoiled and lucky when he does that. That man is a catch and a half.

    I’ve seen the concept of “dopamine menus” floating around on the Internet for some time, as well, and I’ve started merging that concept with a sort of free form to do list before I go to bed if I’m not completely beat to fuck by the time I pass out and can spare a brain cell to dump all the things that might possibly bring me joy the next day even if things go to shit on paper. I often struggle in the moment to think of anything that would bring me a shred of happiness in the moment if I’m sad or bored or anxious and looking for a pick me up, and having all of that on hand and prepped the night before helps a LOT in those moments.

    I think all of those taken in tandem are a decent place to start. I’m trying to move away from the notion that I have to have a Grand Plan ™️ or a goal to accomplish at all times and I really think that teenage me had it right when they said that happiness was having good talks, good music, and good food with good people. That was really their goal in life, and I think they’d be proud of me for getting here. I do a LOT of all of the above.

    So stay tuned for more magic, horseshoes and weedwhackers (you decide what y’all are in the comments). See you fuckers next time.

    -Lazarus

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