Tag: seizure

  • “answer”

    I could ask my body
    what will I do when it has fallen
    and regardless of which side I try and
    coax, pry, cajole, or beat an answer from –
    the deaf side or the silent one,
    the answer is always the same:

    it already has.

    sixteen percent of my brain died before I was
    a year old, I fought tooth and nail to keep
    my own heart. (I was finally removed from
    the transplant list when I was 12)
    I’ve had to re-learn how to walk twice,
    I spent this past july remembering
    how to talk again
    after nearly dying for the nineteenth
    time. I couldn’t form a coherent sentence for
    a month after a seizure episode approximately
    twenty five minutes long
    I’ve been everything short of shot
    and sometimes I wish I had been
    just to get the dying over with
    because “what doesn’t kill you makes you
    stronger” is a goddamn myth
    sometimes what doesn’t kill you makes you
    wish you were dead

    the deaf side of my body and the silent side
    are asymmetrical, imperfect mirrors of each other
    an invisible remnant of the stroke in ‘98
    I can feel the right side but it doesn’t often
    tell me anything anymore because where it should’ve been able to talk my mother screamed
    over it and told me I was faking my pain
    and my sadness, my fear, that I was just
    looking for attention, and it was beaten into
    listening to her instead (she had a knack for
    going for the face)
    it took 24 years to fully break free and by that time
    my mind had shattered as well

    so, what will I do now that my body has fallen?
    same thing I’ve done since I was a child.
    rest, get up, do the damn thing again
    and try to listen for better whispers

    -Allēna 10/27/2025

  • I think seizure brain is improving??

    It’s slow going and I’m still experiencing symptoms, but they seem to improve the more I sleep, which makes total sense. -Allēna

  • Working on my summer brain. It’s just like my normal brain, just with more bruises in it.

    Two days and some change after the seizure and it feels like my brain has a bruise across the front of it. I don’t know if I smacked my head while seizing or what. I just know that I’m very eepy still and very out of it. Thinking is hard 😴😴😴 -Allēna #NEISvoid #seizure #eepy #recovery

  • One full day post seizure and I feel like my brainhole is made of swirly raspberry ice cream….

    -Allēna

    #seizure #postictal #strokesurvivor #recovery #medicaldiary #whatamievendoing